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A nonprofit elevating the voices of rare disease patients, empowering them to advocate for themselves. Promoting allyships between rare disease stakeholders; patients, caregivers, healthcare providers, healthcare systems, pharma/biotech, payors, through provider and patient facing education
Developing content for roundtables, discussions, demonstrations and lectures bringing stakeholders together for positive health outcomes and patient interaction.
https://www.instagram.com/pathwaystotrust/
Currently expanding programs in Pediatric Pain/ Sickle Cell Disease and Ehlers Danlos Syndrome.
Invited by: Dana Bronfman
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Day | Followers | Gain | % Gain |
---|---|---|---|
October 27, 2023 | 395 | +36 | +10.1% |
November 24, 2022 | 359 | +4 | +1.2% |
September 15, 2022 | 355 | +12 | +3.5% |
August 01, 2022 | 343 | +1 | +0.3% |
June 25, 2022 | 342 | +11 | +3.4% |
May 19, 2022 | 331 | +18 | +5.8% |
April 10, 2022 | 313 | +69 | +28.3% |
February 12, 2022 | 244 | +40 | +19.7% |
January 05, 2022 | 204 | +2 | +1.0% |
November 28, 2021 | 202 | +9 | +4.7% |