Jerry Williams on Clubhouse

Bio

He/Him/His - I am living with the rare disease dermatomyositis and the Founder and President of Myositis Support and Understanding Association (MSU), a patient-centered, patient-led, all-volunteer, fast growing nonprofit working to improve the lives of and empower ALL impacted by myositis. 💙

👉🏻 See the MSU Linktree in my instagram bio.

❤️ I lead and interact with love, compassion, and empathy. We all have struggles in life so lets band together and be kind to one another.

👉🏻 4th Annual Myositis Empower Walk, Oct 8, 2022, in person and livestream. In loving memory of Robert Landman, created by his family to support the work of MSU www.MyositisEmpowerWalk.org

🌈 After a 3 year battle to get a correct diagnosis, it finally happened in 2005. Pain and muscle weakness are my biggest challenges at the moment, along with depression. Currently using a walking stick, and during flares I often have to use a walker (rollator) or wheelchair.

🦋 I am currently in remission from Myelofibrosis.

🏳️‍🌈 I am married to my husband Charlie, and we have two dachshunds, our kids! 🐾

🌈 I am a web designer but that is not my passion. My passion is helping others, patient empowerment, and inclusion, diversity and equity in the rare and myositis communities, and community-based advocacy.

🦓 Myositis is a general term for the group of rare, systemic autoimmune diseases called Inflammatory Myopathies. These include
- dermatomyositis
- antisynthetase syndrome
- polymyositis
- immune-mediated necrotizing myopathy
- sporadic inclusion body myositis
- juvenile myositis

💙 If you are living with or caring for someone with myositis please join MSU. You are not alone! Visit www.understandingmyositis.org

Visit MSU on other platforms:
MSU on Instagram, @Myositis
Facebook - @understandingmyositis

And our website www.UnderstandingMyositis.org 💙 🦋 🦓

👉🏻 Check out our new Myositis Support Club, just for those living with myositis and care partners too!

Much love! Remember, smile!