Myositis Support on Clubhouse
Description
For patients and care partners with myositis, (inflammatory myopathies) to connect, encourage, educate and support one another. We discuss our challenges, triumphs, emotional and mental health, and gratitude. Come as you are, be authentic and know you are not alone. Nothing discussed is medical advice. Be sure to also register for free MSU membership, https://UnderstandingMyositis.org
Myositis Patients and Care partners welcome: This club is for those impacted by the rare diseases generally referred to as myositis. Whether a patient or care partner, you are welcome here.
A Positive Space, filled with love: We wrap our club in love, kindness, and respect for everyone. We do not tolerate discrimination, hate speech, bullying, or harassment.
General Guidelines: We ask you keep your mic muted when not speaking. Please do not interrupt others when they are speaking. Mods will take lead and decide how the room runs. NO recording.
Rules
Myositis Patients and Care partners welcome
This club is for those impacted by the rare diseases generally referred to as myositis. Whether a patient or care partner, you are welcome here. We have mature discussions about every facet of life with myositis, with a focus on gratitude. What's shared here stays here.
A Positive Space, filled with love
We wrap our club in love, kindness, and respect for everyone. We do not tolerate hate speech, bullying, or harassment.
General Guidelines
We ask you keep your mic muted when not speaking. Please do not interrupt others when they are speaking.
Mods will take the lead and let you know how the room runs - PTR (pull to refresh) order, popcorn style, or workshop/special guest.
Last 30 Records
| Day | Members | Gain | % Gain |
|---|---|---|---|
| May 25, 2024 | 653 | +26 | +4.2% |
| March 04, 2024 | 627 | +18 | +3.0% |
| January 14, 2024 | 609 | +18 | +3.1% |
| November 30, 2023 | 591 | +13 | +2.3% |
| October 26, 2023 | 578 | +7 | +1.3% |
| September 26, 2023 | 571 | +6 | +1.1% |
| August 28, 2023 | 565 | +13 | +2.4% |
| July 25, 2023 | 552 | +21 | +4.0% |
| June 29, 2023 | 531 | +40 | +8.2% |
| April 04, 2023 | 491 | +10 | +2.1% |
| March 10, 2023 | 481 | +23 | +5.1% |
| January 25, 2023 | 458 | +10 | +2.3% |
| January 06, 2023 | 448 | +10 | +2.3% |
| December 22, 2022 | 438 | +10 | +2.4% |
| November 28, 2022 | 428 | +11 | +2.7% |
| November 09, 2022 | 417 | +9 | +2.3% |
| October 20, 2022 | 408 | +4 | +1.0% |
| October 14, 2022 | 404 | +12 | +3.1% |
| October 02, 2022 | 392 | +2 | +0.6% |
| September 22, 2022 | 390 | +13 | +3.5% |
| September 16, 2022 | 377 | +7 | +1.9% |
| September 09, 2022 | 370 | +10 | +2.8% |
| August 30, 2022 | 360 | +3 | +0.9% |
| August 24, 2022 | 357 | +2 | +0.6% |
| August 17, 2022 | 355 | +7 | +2.1% |
| August 11, 2022 | 348 | +4 | +1.2% |
| August 04, 2022 | 344 | +12 | +3.7% |
| July 29, 2022 | 332 | +2 | +0.7% |
| July 22, 2022 | 330 | +2 | +0.7% |
| July 16, 2022 | 328 | +9 | +2.9% |
