Rare Disease Community Members

Courtney Boggs Rare disease mom and advocate. Cofounder Cure Mito Foundation. @hope4eb

Alex Wheelock statistics lover turned healthcare administrator 📍 nashville, tn | Pr... @wheelockitalot

Dan Lewi @danlewi

Dr. Zainab Almasseri ⚜️ General Pediatric Consultant ⚜️ Genetic and Metabolic Consultant ⚜... @zalmasseri

Margi VH She/Her |📍DC | Activism | Medical Equity | Biomedical Informatics | Pu... @margi.vh

Jing Guo 🇺🇸 欣赏沿途风光的路人 📍🇺🇸旧金山 上海 @jing19

Rajan Chaudhary @rajank21

Dana Pomroy @csloth13

Cherry Emam @cherry.emam

Domingo Delgado Presidente de la fundación FAST España; General Manager en Livensa Liv... @domingodelgado

Jackie Carbajal @jackiecarbs

Barbara Boyd Registered Infusion Nurse 👩‍⚕️ infusing patients with rare 🦓 diseases.... @barbieb68

Michelle Patel GREY SPACE NAVIGATOR Strategic Planning & Operations Leader | Biotech... @empea

Dawn Ireland President and Founder of CDH International- the world’s oldest and lar... @dawn.ireland

Zineb Mechahouri Pharma & Biotech Industry - General Manager North Africa Based in Moro... @zinebmecha

patsy hinson @patsyhinson

HN Luo Communication 🤝, English Practice! THANKS! Mandarin 🇨🇳, English 🇺🇸, C... @thanksal

Haruna Noir UofT’22 — biochemical biophysics and philosophy 📍Downtown 🇨🇦 @inaniloquent

Mike Walsh Patient Engagement enthusiast & Health Advocacy innovator. President... @patientadvstrat

Shellee Luna @lunaceraarts ☽⚪︎☾ @lunabellaarts ♎︎ § Los Angeles expat in the UK § s... @shelleeluna

Lalé Welsh Digital flâneuse, professional social entrepreneur/NGO strategist—with... @lalewelsh

Mel Gillis L.A. vintage and antiques dealer, HallofWonders.com Temporarily hangi... @melgillis

Caitlin Nichols Biomedical scientist & Research Director @ AllStripes @caitlinanichols

alan finglas Founder, Research Manager of MSD Action Foundation, Dublin, Ireland. D... @alanfinglas

Aaron Kamauu MD, MS (Biomedical Informatics), MPH 📍Bountiful, UT Enhancing develop... @akamauu

Brice de Kinkelin @bdekinke

Yael Weiss Clinician scientist currently CEO of Mahzi Therapeutics, focused on th... @yweiss

Gholson Lyon @gholsonlyon

Erin Fleming @futurerin

Michele Collins Nonprofit Founder and Executive Director. Rare epilepsy advocate. Fund... @micheledcollins

Larry Tian 🐣 🐥 🐣🐥 🐥 🐥🐣 🐥 🐣 🐥 🐣 🐥🐣 @larry.tian

Rod Samaco Behavioral Neuroscientist | Expertise in Rare Genetic Dz | Houston & B... @rocsam

Erin Galyean 📖 Published Author 🎤 Professional Speaker 👩🏻‍💼 Corporate Trainer 👨‍👩... @badassadvocate

Jason Crites Data Nerd reducing human suffering as Founder - CEO at Assurance Healt... @jasoncrites

Gigi Thibodeau 💚 Lyme Warrior • Patient Advocate 👩 She/Her 📝 Writer 🖋 Poet 👩‍🏫 Writi... @lyme.blossom

Tasnim Jadwat Freelance Journalist Mom to a rare warrior Foodie, recipe/content crea... @chalokaawa

Joanna Segal Interested in collaborating with likeminded WORLD CHANGERS. 🌎 ON A... @joannasegal

Denise Haas GU Onc clinical research 15+ years. Personally focused on GNB1, m101v... @denhaas

Colleen Lim 🌿 Ops @ Pull to Refresh • Bartender • Sustainable Energy Enthusiast •... @colleeni

Fiona Olivier Public Affairs & Communications pro in healthcare. Kicking around he... @fifiotoole

Vernon Bainton Chief Medical Officer 🧬 💊 🩺 Medico-Strategic Lead ➶ Technophile 🚀 Data... @v_bainton

Gary Quashie 🌍 Healthcare, Innovation and Sustainable Development |📍Oakland, Califo... @garyquashie

Debbie Crews @edoula

Andrew Uhlman Data scientist with a background in wet lab research ⛳️ 🚴‍♂️ 📈 🏋️‍♀️ @uhlman1732

Tina Han Genomics scientist by day, amateur potter and yogi by night, who loves... @tingfordha

Iain Cai @iaincai

Sohani DasSharma @sohoni2021

Gayathri Vijayakumar Virologist at Scribe Therapeutics / Mount Sinai PhD / NYU Biotech MS /... @gayathri_vijayk

Natalie Hall 📱 Looking for iOS Development apprenticeships or entry-level positions... @the-natalie

DrMolly OShea Pediatrician/Parenting expert/Keynote Speaker/Parent and Teen Coach/Mo... @drmollyoshea