Nonprofit Founder and Executive Director. Rare epilepsy advocate. Funding 𧬠gene therapy research through HopeforULD.org
ULD (EPM1) is Unverricht-Lundborg Disease, a rare, genetic, Progressive Myoclonic Epilepsy. It is an autosomal recessive disease.
π rare epilepsy advocate
π rare disease advocate π¦
π mental health advocate
π disability advocate π¨π½βπ¦½
π grateful for Jesus Christ βοΈ
π grateful for family & friends
π animals are blessings πΆ
π kindness matters
π¬π§ π±π»πβοΈπCurious about neuroscience, tech, AI, new places to explore
π Former teacher and reporter; lifelong learner
β€οΈπ§ΆβοΈπ·π§³ππ¨βπ©βπ§βπ¦πͺ΄πΊπΆππβοΈ
I am here to learn, engage, share ideas!
Invited by: Tamarine Mullenaux
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| Day | Followers | Gain | % Gain |
|---|---|---|---|
| August 15, 2023 | 202 | +12 | +6.4% |
| November 18, 2022 | 190 | +3 | +1.7% |
| September 09, 2022 | 187 | +12 | +6.9% |
| July 29, 2022 | 175 | +2 | +1.2% |
| July 07, 2022 | 173 | +4 | +2.4% |
| May 30, 2022 | 169 | +3 | +1.9% |
| April 23, 2022 | 166 | +3 | +1.9% |
| March 19, 2022 | 163 | +13 | +8.7% |
| January 21, 2022 | 150 | +8 | +5.7% |
| December 14, 2021 | 142 | +20 | +16.4% |