Rare Disease Community Members

Sabita Sankar Empowering Data-Driven Decisions in Healthcare at scale . Passionate a... @sabsank

Tom Ng Director of Corporate Partnerships, Life Sciences with Johns Hopkins T... @tomng67

Faith McGown Seeking kindness, meaning and truth. Lover of words, collector of quot... @faithmcgown

Ella Balasa 👩‍💻Patient advocacy and engagement consultant 🫁 #cysticfibrosis 🗣Spe... @ellabalasa

Cath Jayasuriya “Be a lamp or a lifeboat, or a ladder Help someone’s soul heal Walk ou... @cathjayasuriya

Sarvenaz @ssarabipour

Peter Kane Living the simulation. Head of growth marketing at Swoop and IPM.ai—... @petertkane

Mina Fouad @mina_fouad

Nabeel Ahmed Co-founder & Chief Marketing Officer @ Medapp (Healthcare Logistics)... @nabeel0694

Tracy DeHoff Finally writing my own chapter...On a mission to show others that it’s... @tracydehoff

Diana Ferreira Public Health, MSc 📚 Pharma Industry💊 Motherhood🤱🏻. @diaferreira

Shazliya Zuhri 🧠ENTJ 📚심리학과 학부생 젝키🎗️옐키 Sechskies💫 @lilyduck36

Swapna Kakani @swapnaspeaks

Claudia Olmedo Genetics, Culture, Innovation, Technology & Inclusion / Personal views... @claudiaolmedo

Jay Vicknair @jayvicknair

Sandrine Abitan @sandabi

John Novack Making connections for good. Learn about Novack Consulting Services, L... @johnnovack

Lauren Propst genetic counselor | chronic illness advocate 📍 Chicago, IL Who I am:... @laurenpropst

Jenna Brauer Poshmark, Mercari & Kidizen Clothing Reseller Sustainable fashion & s... @jennabunn

Michael Fronstin Healthcare executive and consultant. @fronstin

Yossi Wolfe 🧑🏻‍💻 Lead Software Engineer @ WSJ 🧬 Biomedical Engineering Student @ A... @yossiwolfe

Shivangi Amrit Singer | Songwriter | Western Music Instructor @Kyt Academy | Core Mem... @shingysingslive

Zhaoying Xu @zhaoying

Mark Boulding In life sciences working to bring therapies to people with rare diseas... @boulding

Abdullah Alzaid @garthwaite

LadyCortex ... ▪️Let’s pretend that existence isn’t suffering ! ▪️A nonbeliever when... @lady.cortex

Joana Matos @joana_em

Juliana Dourado Geneticista Fundadora “Gênica Análises Genéticas” 👩🏻‍💼Aconselhadora Ge... @juli_dourado

ASADPOOR سلام عزیزان اينجانب دكتر ساسان اسدپور متخصص كودكان و نوزادان پزشك شاغل... @pedi60430

invinciblejha We developed novel drug molecules and vocal biomarkers for rapid Covid... @invinciblejha

سلامة عاصف 🇦🇪 🇮🇳 @febuxostat

Gabriele Columbro Open Source Exec, Executive Director at FINOS, Fintech Open Source Fou... @mindthegab

Doug MacDougall Managing Partner of MacDougall Advisors. 33 years in the biotech indus... @macbiodoug

Tom Fitzgerald Primary, Secondary and Tertiary Packaging Consultant. Expertise in ana... @tomfitz24

Megan O’Boyle @meganoboyle

Erin Gwozdz Senior UX/UI @ Broad Institute 🧬 Working to build Pepper, a patient-pa... @eringwozdz

Cristina Perez Mom of 2. Wearer of many hats. I ❤️ Motherhood, Music, Writing, Creati... @cristinanola

Suleva Povea @sulevapovea

Karissa Skvarla 🦋🦋Here to LISTEN.LEARN.&SUPPORT🦋🦋 HOW CAN I HELP ?? Will my children r... @karissaskvarla

JUN-HUNG CHO Innovative and results-oriented Scientist with extensive laboratory re... @chojunhung

Gail Hilton Childhood dementia - challenging the world to think differently. Gail... @gailhilton

Abdelali (Ali) Majdi M.D. | Medical Affairs | Pharmaceutical Industry | France Morocco Worl... @litimumab

Inger-Margrethe Paulsen @ingermsp

Marc Wa @marc1000

Talea Miller @talmill

Angela Jocson 🧬 Rare Disease Patient Advocate and Project Manager at @allstripes @angelalj

Alison Guthrie Psychology. 🧠 Human. 🤷🏻‍♀️ Rare Disease Warrior. 🦓🥄 Plant lady.🌵🪴 Outd... @alisonguthrie

Sadaf Saba 🧬Passionate about Genomics & Personalized Medicine 👩🏻‍💻PhD candidate... @sadaf-s