Sma type1 Sofia Deniz on Clubhouse

Bio

Save Sofia Deniz’s Life !

We are writing for saving our 14 months old daughter Sofia’s life… When Sofia Deniz was born, everything was going fine until his 4th month and after we observed weakness of tendon reflexes (inability to use her hands while playing small toys!). After many doctor's checks we faced reality is that our daughter Sofia Deniz was diagnosed with SMA TYPE-1. SMA (Spinal Muscular Atrophy) is a neuromuscular disease, which manifested by a progressive loss of muscle strength that affects the ability to walk, swallow and breathe and it is the first genetic cause of infant mortality. SMA has 4 types of risk level and our daughter Sofia Deniz has Type 1 which is the most highly risky one for mortal resultant! ONLY TREATMENT is genetic therapy called Zolgensma , and TOTAL COST OF THERAPY is $ 2.2 million and must be received treatment in the United States. This genetic therapy only beneficial if treatment received less than 2-years-old. In addition, our daugther Sofia Deniz is 1 year old and we are FIGHTING AGAINST THE TIME… WE STARTED A DONATION CAMPAIGN over GoFundMe is the world’s largest, free social fundraising platform. To reach $ 2.4 million for genetic therapy to save Sofia Deniz’s LIFE; we need the support of volunteers who can help us during this fight and donate motor neurons for our little daughter. We are full of hope that we will Save Sofia Deniz’s LIFE with your donations… This campaign dedicated exclusively to Sofia Deniz’s treatment. Best Regards, Sofia Deniz’s Mom & Dad; Kateryna & Umut ŞEN Tel:+905051620502