Michelle Maquinalez on Clubhouse

Bio

I have multiple chronic medical conditions including eds, gastroparesis, temporal lobe seizures, chronic respiratory failure with hypoxia, pulmonary hypertension, pots, complex migraines, abdominal migraines, crps and I’ve had pulmonary embolisms twice and no one knows why. It’s damaged my lungs thus causing the chronic respiratory failure with hypoxia. I had to have surgery on my diaphragm because my stomach and intestines were in my chest collapsing my lung and shifting my heart they said if they didn’t do surgery I would die. I love to journal and watch impractical jokers. I also love to draw. I’m a mom to two busy kids that probably have eds but aren’t diagnosed one is an all star cheerleader the other is going into high school and wants to play football. All things I worry about all the time. But I have to let them live. I try to be supportive to our fellow chronic illness/rare illness fighters and try to educate as many people as possible because the things I’ve been through are definitely rare.

I’m marine corps retired I’ve been a surrogate twice for a single dad from Germany.