π PATIENTS: Follow for tips on being cast in media & awareness campaigns!
π Author of Surviving and Thriving with an Invisible Chronic Illness (In bookstores everywhere!)
βΏοΈ Patient Leader Network Manager at WEGO Health.
π¦ Rare disease patient and advocate
π΅ Yes Iβm the WEGOHealth TikTok girl π€¦π»ββοΈ
ππCAN WE WORK TOGETHERππ
ββββββ
My job is to get to know YOUR story. What physical disability, mental illness, cancer or chronic illness do you live with and educate others about (either through social media, non-profit work, or on the ground advocacy)?
π DM me on Instagram
πMake a profile on WEGOHealth.com
πRespond to recruiting requests if they fit your story. I post daily!
π©π»β𦱠ABOUT ME π©π»βπ¦±
βββββ
π Ilana Jacqueline is a speaker, author, advocate and healthcare marketing professional.
π She currently serves on social innovation and recruiting at WEGO Health, a patient leader network.
π In 2018 New Harbinger Publications published her self- help autobiography SURVIVING AND THRIVING WITH AN INVISIBLE CHRONIC ILLNESS.
π©π»βπ» The story was inspired by her tell-all blog she wrote about her diagnostic odyssey with a rare disease and the advice she gives to other patientsβ not on how to treat or eat for their diseaseβ but how to continue your life through the all consuming parts of it.
𧬠Sheβs worked for the international nonprofit Global Genes as their Managing Editor for five years, before becoming the Manager of Patient Advocacy at the health tech AI company, FDNA leading their genomics collaborative. Sheβs written the health beat for publications like Cosmo, Marie Claire, xoJane and The Miami Herald.
π©π»βπ» Her second book is a young adult novel that sheβs currently querying for. π€
πFUN FACTSπ
ββββββ-
β¨I live in South Florida. π΄(Boca Raton)
β¨ I am the inspiration behind LIFETIME TVβs Behind The Mystery: Rare and Genetic. My mother, Carri Levy, is the creator and producer of the show for 10+ years now! π₯
β¨Proud poodle mom πΆ
β¨Working on book #2 β a young adult novel π©π»βπ» (actively seeking new literary agent representation)
β¨Survives entirely off of sushi and matzo ball soupπ₯£π±
β¨obsessed with TikTok and forcing it on everyone π
Invited by: Cece Feinberg
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Day | Followers | Gain | % Gain |
---|---|---|---|
February 23, 2024 | 231 | +7 | +3.2% |
March 18, 2023 | 224 | +2 | +1.0% |
January 22, 2023 | 222 | +2 | +1.0% |
September 28, 2022 | 220 | +3 | +1.4% |
August 07, 2022 | 217 | +5 | +2.4% |
July 01, 2022 | 212 | +1 | +0.5% |
May 25, 2022 | 211 | -1 | -0.5% |
April 17, 2022 | 212 | +8 | +4.0% |
March 10, 2022 | 204 | +1 | +0.5% |
December 05, 2021 | 203 | +7 | +3.6% |