Founding Board Member & President of ASPIRE, a PANS PANDAS Organization. Alliance to Solve PANS & Immune-Related Encephalopathies
👥Mom-twin boys | 🐶lover | 🪶watcher | 🎤public speaker | 🧠PANS/PANDAS advocate | 🧩autism advocate |
👩💻www.ASPIRE.care
📧 [email protected]
⏩ facebook.com/aspirepans
✴️ instagram.com/aspirepans
🧠 Mental Health & Neuroimmune Health & Autoimmune Encephalitis
PANS/PANDAS are misdirected immune responses that result in acute onset of OCD, tics and/or restricted food intake, along with two neuropsychiatric symptoms in seven categories. PANS is an acronym for Pediatric Acute-Onset Neuropsychiatric Syndrome. PANS is a clinical diagnosis based on a child’s medical history and physical examination. Symptoms cannot be better explained by another diagnosis. There is no age restriction for a PANS diagnosis. PANS can be triggered by infections, metabolic disturbances, and other inflammatory reactions. Infectious triggers include upper respiratory infections, influenza, recalcitrant sinus infections, mycoplasma pneumonia, and lyme borreliosis, among others.
🩺PANS PANDAS SYMPTOMS
✅OCD and/or Severe Eating Restriction
✅Anxiety & Separation Anxiety
✅Emotional Lability & Depression
✅Aggression & Rage & ODD
✅Developmental Regression
✅Decline in School Performance
✅Tics, Sensory Processing Issues
✅Somatic Signs: Urinary Frequency & Sleep issues
About ASPIRE
Our Mission: To improve the lives of children and adults affected by PANS, PANDAS, and related encephalopathies.
Our Vision: We aspire to create a world where children and adults affected by PANS, PANDAS and related encephalopathies obtain a timely diagnosis from informed providers and receive effective, proven and affordable treatments and support in all areas of daily living, without discrimination.
Who We Are: We are experienced leaders in the PANS advocacy community. We are parents, providers and experts in our field who believe collaboration and empowered action are the keys to the world we seek: one where no one suffers through PANS and immune-related encephalopathies without access to a knowledgeable provider, insurance coverage for standard-of-care treatments or the support that comes with public awareness.
Invited by: Emily Johnson
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Day | Followers | Gain | % Gain |
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January 04, 2024 | 49 | 0 | 0.0% |
November 20, 2022 | 49 | +1 | +2.1% |
September 10, 2022 | 48 | +1 | +2.2% |
June 23, 2022 | 47 | +1 | +2.2% |
April 08, 2022 | 46 | +2 | +4.6% |
February 09, 2022 | 44 | +3 | +7.4% |
January 03, 2022 | 41 | -1 | -2.4% |
November 26, 2021 | 42 | +2 | +5.0% |
October 18, 2021 | 40 | +3 | +8.2% |
September 11, 2021 | 37 | +3 | +8.9% |