Ehlers Danlos Syndrome on Clubhouse
Description
Welcome to the EDS Collective on Clubhouse for all things Ehlers-Danlos Syndrome.
Welcome physicians, geneticists, scientists, allied health care professionals.
Welcome individuals w/ EDS/HSD, those suspected of EDS/HSD, caregivers and allies.
Our goal is Educating, Engaging, and Encouraging those living with all types of EDS, & those suspected of EDS or with comorbid conditions to live full, purpose driven lives.
Hypermobility | Mast Cell Activation Syndrome (MCAS) | Postural Orthostatic Tachycardia Syndrome (POTS) | Gastroparesis | Chiari Malformation | Smallfiber Neuropathy | Mitral Valve Prolapse | Dysautonomia | Chronic Fatigue | Fibromyalgia | ASD | Chronic Pain | Migraines | Craniocervical Instability | Raynaud’s |
Tap [Follow] to build our EDS community on Clubhouse
✔︎ Living w/ EDS & living w/Purpose
THURSDAYS 6:00PM EDT
✔︎ Connective Detectives FRIDAYS 6:00 PM EDT
We care deeply about creating inclusive communities, so please reach out to us with any ways to improve your experience.
If interested in co-moderating connect with Beth or Alison on IG @bethmmckee @alisonvguthrie
No Sales, promotions, or pitches : Thank you for understanding.
Be kind: Please respect each other’s experiences, treat one another with kindness & respect.
Rules
No Sales, promotions, or pitches
Thank you for understanding.
Be kind
Please respect each other’s experiences, treat one another with kindness & respect.
Last 30 Records
| Day | Members | Gain | % Gain |
|---|---|---|---|
| May 26, 2024 | 510 | +2 | +0.4% |
| March 04, 2024 | 508 | +1 | +0.2% |
| January 14, 2024 | 507 | 0 | 0.0% |
| December 01, 2023 | 507 | +1 | +0.2% |
| October 26, 2023 | 506 | +1 | +0.2% |
| September 26, 2023 | 505 | -1 | -0.2% |
| August 28, 2023 | 506 | +3 | +0.6% |
| July 25, 2023 | 503 | +1 | +0.2% |
| June 29, 2023 | 502 | +1 | +0.2% |
| April 04, 2023 | 501 | +1 | +0.2% |
| March 10, 2023 | 500 | +6 | +1.3% |
| February 02, 2023 | 494 | +1 | +0.3% |
| January 29, 2023 | 493 | +1 | +0.3% |
| January 25, 2023 | 492 | +1 | +0.3% |
| January 21, 2023 | 491 | +1 | +0.3% |
| January 18, 2023 | 490 | +1 | +0.3% |
| January 14, 2023 | 489 | +1 | +0.3% |
| January 06, 2023 | 488 | +1 | +0.3% |
| January 03, 2023 | 487 | +1 | +0.3% |
| December 30, 2022 | 486 | +1 | +0.3% |
| December 22, 2022 | 485 | +4 | +0.9% |
| November 22, 2022 | 481 | +2 | +0.5% |
| November 15, 2022 | 479 | +2 | +0.5% |
| November 09, 2022 | 477 | +1 | +0.3% |
| October 20, 2022 | 476 | +1 | +0.3% |
| September 28, 2022 | 475 | +1 | +0.3% |
| September 16, 2022 | 474 | +1 | +0.3% |
| September 09, 2022 | 473 | +1 | +0.3% |
| August 30, 2022 | 472 | +1 | +0.3% |
| August 17, 2022 | 471 | +2 | +0.5% |
