Thandi&Tumi Molefi on Clubhouse
Bio
🧬🙏🏼 Raising awareness about a genetic disorder KCNT1 gene mutation.
🧠 🧬Son Kamogelo was diagnosed with this rare genetic disorder in December 2018, after he was born with a deficiency in a Sodium / Potassium called KCNT1 gene that mainly causes uncontrollable seizures.
📖 media article with news24 about our son:
https://www.news24.com/parent/baby/toddler_1-2/time-is-running-out-for-baby-kamogelo-as-he-battles-rare-genetic-disorder-20200921
📺 televion interview with news room ENCA in South Africa:
https://www.enca.com/life/family-raising-funds-treatment-rare-disease.
🎗🎗Crowd funding campaign to raise funds for treatment:
https://gogetfunding.com/help-baby-kamogelo-molefi-fight-this-rare-genetic-disorder/#.X43ojOCsc0c.whatsapp
👩👦our son Kamogelo has overcome so many challenges at one point the doctors said he wouldn’t live past 6 months.
He is truly an inspiration to keep fighting.
Invited by: Bianca Naidoo
Last 10 Records
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| Day | Followers | Gain | % Gain |
|---|---|---|---|
| September 26, 2023 | 71 | -1 | -1.4% |
| October 25, 2022 | 72 | +2 | +2.9% |
| June 10, 2022 | 70 | +2 | +3.0% |
| January 27, 2022 | 68 | +1 | +1.5% |
| November 12, 2021 | 67 | +2 | +3.1% |
| October 05, 2021 | 65 | +1 | +1.6% |
| August 22, 2021 | 64 | +6 | +10.4% |
