Name |
Followers |
Following |
Registered |
Robin Schultz
Seeking a cure for CMT4B3 Charcot-Marie-Tooth Disease Type 4B3
Cmt4b3r...
@robinschultz
|
410 |
85 |
Sep 16, 2020 |
|
331 |
283 |
Sep 17, 2020 |
Bo Bigelow
Co-founder @ The Disorder Channel and DISORDER: The Rare Disease Film...
@bobigelow
|
321 |
147 |
Sep 18, 2020 |
Kasey Woleben
Rare disease mom and advocate
Cofounder/Cure MITO Foundation/supports...
@kaseyw
|
174 |
132 |
Sep 18, 2020 |
Vijay Sappani
Unicorn founder | Rare disease hunter | Impact investor I Aspiring phi...
@vsappani
|
713 |
341 |
Sep 21, 2020 |
Nicole Henwood
Mother, donor, physician, president, and CEO - NF2 BioSolutions
Rare...
@nicolenf2
|
317 |
195 |
Sep 24, 2020 |
|
39.7k |
4.3k |
- |
Hannah Lowe Corman
🧬 President of muscular dystrophy nonprofit, L-CMD Research Foundation...
@hannahlc
|
271 |
256 |
Oct 3, 2020 |
|
57 |
35 |
Oct 16, 2020 |
Lisa Manaster
CO-founder and President of the CACNA1A Foundation-working with a sens...
@lisahman
|
134 |
119 |
Oct 29, 2020 |
Spela Mirosevic
Researcher and a mother trying to find treatment solutions for her son...
@spelam
|
90 |
124 |
Nov 14, 2020 |
Casey McPherson
Entreprenuer, musician, and father of two daughters - my youngest, Ros...
@caseymcpherson
|
692 |
350 |
Dec 3, 2020 |
Natasha Malhi
Community Builder/Connector/Community Host of Clubhouse/ Content Advis...
@nattasha
|
64.5k |
3.9k |
Dec 22, 2020 |
Effie Parks
✨Podcaster✨
🎤Host of Once Upon A Gene
📺 Co-host Once Upon A Gene TV...
@onceuponagene
|
1.6k |
1.2k |
Jan 1, 2021 |
Christopher Velona
Consultant
CSG Consulting
Special needs parent ♿️
Director at Project...
@chrisvelona
|
71 |
70 |
Jan 12, 2021 |